Monday, January 17, 2022

UPDATE Day 9???

 My crohn's has went back to where it was when I started Humira two years ago, even though 1 yr ago this month I was in full remission with out signs of damage. They are thinking the hip and it's replacement triggered enough inflammation to retrigger the Crohn's as it triggered inflammation up my entire back causing headaches. That is the bad news.

The good news according to my Doctor is we know Humira will work so it's back on the original schedule of one shot every two weeks instead of once a month like it has been the past year. AND remove chemicals from my diet AND increasing anti inflammatory foods. WHICH is more than I did two years ago. 

Told me to look at my garden as my drug store and the food as the medicine. Can use it as practice when I hit Medicare and they don't want to pay for the Humira. His wife and him garden and can a lot of their own food.

What am I doing?

Still in pain that rolls through on a 2 hr time frame instead of a 10 min time frame, still cramping goes with the pain and chilling. Have the shakes (might be a drop in caffeine as I am drinking ginger tea and white tea instead of black tea). I am able to eat 1/2 cup of food at a time and then have to wait 3 hrs before I can handle eating again. I've lost 8 lbs. 

MEANTIME I have finished hunting for seeds and am now planning what to start when in the grow cart. 

Hubby has ran 3 people to the ER in the past week including one today. Medication is taking twice as long to get filled. 

Things are not good.


  1. I hope your changes give you relief. I can't imagine the constant pain.

  2. Hi Juls did you know that cough syrup with codeine will stop diarrhea?It paralyzes the bowels so that they stop spazzing but don't take for more than 3 days because it is addictive.Then take 2 drops of oil of oregano mixed in juice 3 times a day for 2 wks.followed by acidopholous to replace the good bacteria back into your guts.This heals your guts then once a day take a tsp. of honey & cinnamon (1c.of unpasteurized honey mixed with 1 tbsp. of cinnamon)every day,Also yogourt and peppermint tea are good.I have been free of crohn's for 10 yrs. now doing this regimin.Before that I lived on rice,mashed potatoes,cooked chicken,cooked carrots and green beans.I couldn't eat any fiber at all or anything raw and had diarrhea 10 times a day.I can eat everything now,it took about 6 mths. to totally heal my guts but I saw improvement within the first 2 weeks of doing this.Fermented foods are also good for the guts.

  3. You are lucky to find a doctor who likes to use food as medicine. I too have IBD and use food as much as possible to keep things controlled. Food and a low stress life style are my go too saviors for my gut. Non inflammatory foods are a must.

  4. This is bad! I feel for you. I have been having cramps so bad I get vocal about it, groaning and moaning. However, no diarrhea. Can you handle the RICE diet? Medicare won't pay for Humira? Why?

    1. Medicare is not allowed to negotiate prices of meds like other drug ins can so it's full price.

  5. I am sorry to hear that you are still in such pain albeit the intervals are more spaed out than they were. I am sure with your wonderful cheffing skills you will make the change of diet tasty and interesting whereas many of us might fail at this, I am sure you will succeed. Continuing to wish you well from the U.K.
    J.P. in the U.K.